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Get Involved

Since its inception in 1988, the Canadian Association for Porphyria has progressed from a small rural organization into an international resource for porphyric patients. CAP provides invaluable resources for porphyrics, their loved ones, health care professionals, and medical researchers. Without the generosity of our donors, it would be impossible to continue our efforts to “improve the quality of life for people affected by porphyria”.  Please help us carry out our mission by making financial contributions, volunteering your time, supporting our programs, and spreading awareness.

Honour a Loved One
Make their day memorable… This year, give a gift that will last…
Instead of buying a gift for your loved one for their birthday, anniversary, or other special occasion, make a donation in honour of (or in memory of) them to the Canadian Association for Porphyria. Gifts received will be used to pursue the goals of the association, including our mission of “improving the quality of life for people affected by porphyria” through education, information, advocacy and support. Click here for information on making a donation! Thank you for remembering CAP and honouring that special person in this unique way!
Registered Charity Number 11883 5305 RR0001; Tax receipts issued for gifts of $10 or more.

Plan a Community Event
Suggest that a community fundraiser, such as a curling bonspiel, golf tournament or concert, donates proceeds towards CAP programs, or organize your own event! Contact us to get started!

Promote Awareness and Advocacy
Become one of our volunteer pamphlet distributors! Ask if our informational pamphlets on porphyria can be displayed at places in your community, such as doctors’ offices, hospitals, pharmacies, and medical clinics, or display them in your own office. Contact us to get started!

Patient Registry
There is strength in numbers…
In our office, we keep a confidential database containing a registry of diagnosed individuals. (Please see our Privacy Policy.) We find that when applying for funding and promoting awareness, it is helpful to know how many people we are giving support to. Our registry is also useful in compiling statistics. If you have been diagnosed with porphyria, and would like to be added to our confidential registry, please contact us.

Celebrate National Porphyria Day (June 1st)
Beginning in 2005, National Porphyria Day has been celebrated each year on June 1st. Events take place all across Canada to help commemorate this special day.

Background: Thanks to a family in Prince Rupert, British Columbia, June 1st is National Porphyria Day. June 1st is the birth date of their daughter who was born with VP, a type of sun-sensitive porphyria. Her brother and father have VP as well. It was this family's suggestion of June 1st that inspired Canada's date for National Porphyria Day. England and Sweden have followed suit with the same date.
National Porphyria Day is a great opportunity to promote awareness. If you would like to host a support group meeting, plan a fundraising event, or help educate the people in your area about porphyria, please contact us for free educational material to distribute or posters to advertise your event.
Also, each year on National Porphyria Day, the Canadian Association for Porphyria holds an open house at their National Head Office, located at 487 Walker Avenue, Neepawa, Manitoba.  All are welcome to attend, and refreshments are provided. If you happen to be in the area, please join us!

Donate Shoppers Drug Mart Points
Thanks to Shoppers Drug Mart and the Shoppers Optimum Program™, we have another way for you to show your support – by donating Shoppers Optimum Points™. By donating some (or all) of your points to us, you are enabling us to use your points at Shoppers Drug Mart® toward the purchase of needed products and supplies. To donate your Shoppers Optimum Points™, please go online to www.shoppersdrugmart.ca and click on “Donate Now!” Donations can also be made in-store, by talking to a cashier.

Make Online Purchases Through Cangive
The Canadian Association for Porphyria has recently partnered with Cangive.ca. In addition to helping shoppers locate popular merchants, Cangive.ca is designed to raise funds for Canadian Registered Charities. Cangive.ca's online technology enables shoppers to support their favourite cause simply by shopping online.
Each time shoppers go to www.cangive.ca and make a purchase from any one of more than 175 leading online stores (including Canadian Tire, Chapters-Indigo, Amazon.ca, and Dell.ca), up to 15% of the sale will support the Canadian Association for Porphyria. Items purchased through Cangive.ca are the same price as if they were purchased directly from the merchant's online store. Please visit Cangive.ca today for details.

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